Coaches Cure CF began as a result of the Tarletsky and Judge families’ desire to do more to cure cystic fibrosis in honor of Alex Tarletsky. Together the families organized fundraising events and in 2006 began hosting a golf tournament. Soon after, with the assistance of Seton Hall University’s head basketball coach, Kevin Willard and Athletic Director, Pat Lyons, Coaches Cure CF was born. The goal of Coaches Cure CF is simple, to raise awareness of cystic fibrosis and further the mission of the Cystic Fibrosis Foundation by supporting development and research programs targeting new therapies and eventually, a cure.
Wearing the warm up suits at Coaches Cure CF Awareness games highlights and honors the dedicated discipline which those who struggle with this life threatening illness must demonstrate every day. The Tarletsky and Judge families are grateful to Iona College and head coach Tim Cluess, as he and his staff initiated this tradition. Wearing warm up suits further raised awareness during Iona’s final six games of the 2012-2013 season, including its nationally televised MAAC Championship win over Manhattan and NCAA Championship Second Round appearance vs. Ohios State.
Coaches Cure CF began at Iona College and grew to include Providence College, Seton Hall University, and University at Albany. We encourage and welcome coaches, teams, and communities to assist with the fight against this disease and make CF stand for cure found. If you are a coach or a school looking to be involved, please contact us for a marketing plan designed to assist in planning awareness games, ideas on how to get further involved , and simple fundraising plans.
Contact Katie Judge at email@example.com to get involved.
What You Need to Know (Courtesy of the Cystic Fibrosis Foundation)
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
- clogs the lungs and leads to life-threatening lung infections; and
- obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
Symptoms of Cystic Fibrosis
People with CF can have a variety of symptoms, including:
- very salty-tasting skin;
- persistent coughing, at times with phlegm;
- frequent lung infections;
- wheezing or shortness of breath;
- poor growth/weight gain in spite of a good appetite; and
- frequent greasy, bulky stools or difficulty in bowel movements.
- About 1,000 new cases of cystic fibrosis are diagnosed each year.
- More than 70% of patients are diagnosed by age two.
- More than 45% of the CF patient population is age 18 or older.
- The predicted median age of survival for a person with CF is in the mid-30s.